AS

Ankylosing Spondylitis

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An Open Letter To Healthy People From A Former Healthy Person
An Open Letter To Healthy People From A Former Healthy Person

We are strong, admirable role models because we have no choice but to fight for sanity and purpose every day of our lives, with every beat of our heart, with every step of our feet or our cane or our walker or our wheels.

Being Kind to Your Body
Being Kind to Your Body

For Kristin, physical self-care is "about being kind to yourself. No one is perfect, and you can’t beat yourself up for that. Push yourself to accomplish what gives you the highest level of physical self-care, but don’t lose it all for one tiny step back."

Finding the Positive in Your Day to Day Life
Finding the Positive in Your Day to Day Life

"One thing I’ve learned while navigating the journey of chronic illness is that you have to be kinder to yourself." Kristin shares how she's getting better at self-care by focusing on what her body needs, what it doesn’t need, and when/how to push through if possible.

Beat that AS (Ankylosing Spondylitis)!
Beat that AS (Ankylosing Spondylitis)!

Living with A.S. and other Spondyloarthritis diseases entails challenges that often go unseen to others. Whether it’s getting out of bed, cooking dinner, or going for a walk; we want to hear what you do everyday to overcome A.S.

 
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ANKYLOSING SPONDYLITIS SELF-CARE APP

Developed in partnership with people with Ankylosing Spondylitis (AS) and the Canadian Spondylitis Association, this app makes it easy to record your symptoms, fatigue levels, moods, and more. Choose what you want to track to build your own summary “My Storylines” to learn more about your health, and to share more – safely and securely – with your doctor about what happened between visits.

By using AS Health Storylines, you have the opportunity to anonymously contribute learning from your story to a vital data resource that the healthcare industry can use to improve care in the future, for people like you.

Download for free from the Apple App Store or the Google Play Store.

FATIGUE TRACKER Monitor your fatigue levels to learn more about your energy patterns.

BUILD ROUTINES TO HELP MANAGE YOUR PAIN Create routines and get reminders for exercising and taking breaks to relieve pain and stiffness.

SYMPTOM TRACKER Track symptoms and side effects to see patterns that you may need to share with your doctor.

MEDICATION REMINDER Keep your mind at ease by receiving reminders for taking your medications on your mobile device. 

DAILY MOODS AND JOURNAL Track and understand your emotions and what might be driving them. Keep a journal as it has been shown to increase wellbeing.

 
 
 

WANT TO CONTRIBUTE A STORY? 

When it comes to coping with a new normal, switching therapies and experiencing new side effects, it’s hard to know where to turn for guidance. More than stats, hearing what worked for a real live person who’s gone through it can help prepare other patients for what they can expect. Your story is also a valuable form of Real World Evidence that can inform decision making in health care, drug development, and patient support programming. Share your story today!